Thou shalt help those with special needs find their best place among us!

Paul Kipnes is the rabbi at Congregation Or Ami in Calabasas, CA and my classmate at the Rhea Hirsch School of Education at HUC-JIR (Class of '91). He has a terrific Blog called Or Am I? Below is his post from yesterday. It sends a very strong message of inclusion which I echo. And he asks an important question: Who else makes it a point to meet the learners with special needs where they are? And I am asking not only about Bar/Bat Mitzvah, but also about other points of connections. 

For congregational schools: Is your school willing to include any child in your established classes if they are included in their weekday school? Are you willing and able to provide paraprofessionals or madrikhim to shadow them if that is how they best learn? Is your school willing to create stand alone learning for those students for whom inclusion is not the best answer? What about physical needs? Is there a ramp or lift on the bima? Large print siddurim and a hearing assist system? Do you have an elevator if the synagogue has upper floors? There are more things we could be doing.

In the Torah, Amalek is considered the ultimate in evil. He was no the only king to attack the Israelites, but he gets the biggest black hat because he ordered his troops to attack the rear of the Israelite column. that is where Moses had positioned the non-combatants, which surely included those whose physical and other abilities prevented them from being effective fighters. We can assume that if they had people with special needs (it is possible that such people didn't survive long as slaves in the ancient near East) they were among those to suffer first at Amaleck's hands. The message is clear to me: that it is a compelling positive mitzvah: Thou shalt help those with special needs find their best place among us!

I am proud of Paul, Doug and their congregation for what they do and what Paul told that parent. I am equally proud that my congregation can answer yes to all of the questions I listed above. I am proud that two of our madrikhim (one is my son) work closely with two young men with autism in a stand alone classroom and that we we have a special needs coordinator who monitors all of our learners, helping avocational teachers learn how best to respond to those learners' needs. 

Please comment to this post by sharing the ways in which your school/congregation/institution works to meet the needs of learners (children and adults) who encounter the world differently from the statistical mean. And now for Paul's post: 

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Of Course Your Child with Special Needs Can Become a Bar Mitzvah

I received a message recently about a parent of a child with special needs. It seems that this parent was unsure that the special needs child could ever become a Bar Mitzvah. Here's my response to the parent:

Recently, Cantor Doug Cotler and I officiated at two different B'nai Mitzvah services of children with special needs. In each case, the parents were sure that their child would never read from Torah, lead the service or become a Bar Mitzvah. Like the few dozen other such families who thought the same, they were overwhelmed and blown away when their child led the service, read from Torah and gave a speech. There wasn't a dry eye in the house!

At Congregation Or Ami, we are committed to the idea that any child of a member who works to the best of his or her ability, has the privilege and right to a Jewish learning experience and to becoming a Bar/Bat Mitzvah. The children participate in a real service, just one that is subtly tailored to each child's unique abilities (which, by the way, is basically what we do for EVERY child). 

What does that mean?

• Maybe he will read Torah but not Haftarah.
• Maybe he will sing the prayers he knows and explain others.
  
  
• Maybe his service will be before only 15-20 of the closest and then there will be a bigger party.
• Maybe he will only chant one verse of Torah per aliyah.
• Maybe his Torah portion will be the V'ahavta prayer, which he will already know by heart (the V'ahavta in the prayerbook, comes from the Torah).
• Maybe... maybe... maybe...

The keys to it all are three interlocking elements:

1. The commitment of the Temple to say "YES, this CAN and WILL happen."
   
2. The creativity of our B'nai Mitzvah tutor Diane Townsend to figure out ways to get each child to do his/her best. Diane works with me to tailor the service in a way that outsiders would not realize is tailored, but makes your child shine brightly.
   
3. The willingness of the parents to let go of their sense that it cannot happen, but instead to believe that yes, my son - just like every other Jewish boy - can become a Bar Mitzvah.

By the way, I have NEVER encountered a child with special needs (at Congregation Or Ami or at my previous synagogues) who could not and did not become a Bar/Bat Mitzvah.

I so look forward to celebrating as your son becomes a Bar Mitzvah. So don't worry. Just say to yourself, "Yes, this will happen." Then breathe...

We can talk more if you want.

Gosh, I wish we could better publicize this message. I wish that all synagogues would realize that there should be NO barriers to children with special needs, especially with regard to Jewish ritual.

Alas, we can only work in our little corner of the world...

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What is happening in your corner of the world? Please post a comment and share! - Ira

I have recently been invited to join a committee that is exploring how to make access to Jewish education a priority in congregational schools for learners with the whole array of disabilities. While I have always cared about the full spectrum of special needs in Jewish Education, I have to tip my kipah to my friend and teacher Rabbi Fred Greene of Temple Beth Tikvah in Roswell Georgia.Fred came to my congregation in CT straight out of rabbinic school and he really held my toes to the fire on this issue. It is so easy to concentrate on the needs of the many, but we are only as good as how we treat the few. And the lesson is not lost on anyone. I came across the blog Special Education {Tech} courtesy of someone I follow on twitter (I apologize for not giving credit).

This is from a blog entry by Chris Vacek, an educator whose bio follows the article. I think he presents an interesting and important challenge to us as educators. I am not yet certain his list is comprehensive or completely applicable in our settings, but I think it is the beginning point for an important conversation.

An Open Special Education Contract

Recently, I came across a classroom blog that struck a profound chord in me. It contained a teacher’s “manifesto”, with the promises the teacher made to his students. I love this idea, and thought about special education. I have never seen a Special Education Contract of that sort, and immediately started jotting down ideas. Then it occurred to me that this really needed to be an “open” project, and that I should seek the input of the special education world at large. If you are a special education professional, service provider, teacher or administrator, or a parent or advocate or a person with special needs, please contribute to this project. The items below are a beginning, and presented in no particular order, and I welcome your feedback and additions. I would love to see this grow and saturate the online special education community – so please share this with your friends, colleagues and contacts. Thanks!

1. I promise to do no harm.
   
   
2. I promise to individualize your education to the best of my abilities and resources.
   
   
3. I promise to focus on your outcomes, and to be able to explain what difference the current education program makes to your functional independence later in life.
   
   
4. I promise to listen to your parents, and work towards their goals, and yours.
   
   
5. I promise to champion your success, and value your failures.
   
   
6. I promise to promote your opportunity, and to seek opportunities for you to succeed.
   
   
7. I promise to educate myself, to help educate you.
   
   
8. I promise to use technology, and to help you use technology, so we can both succeed.
   
   
9. I promise to strengthen your skills, and use your strengths to further strengthen your weaknesses.
   
   
10. I promise to put your outcomes and needs first, and keep them close and centered, in your heart and mine.
    
    
11. I promise to gather data on all your outcomes, and to only use data-informed, peer-reviewed, scientifically established interventions that document measurable progress.
    
    
12. I promise to respect you and your wishes, always.
    
    
13. I promise to involve you in decisions about your future, as best I can and as you are able.
    
    
14. I promise to center your education around your needs today and your needs in the future.
    
    
15. I promise to help generalize your skills in the classroom, and the home, and the community.
    
    
16. I promise to use the most appropriate tools available for us to learn.
    
    
17. I promise to remember daily that you are a wonderful human being, and that data and statistics rarely tell the whole story of YOU.
    
    
18. I promise to help you fill your life with rich experiences in art, music, science, social studies, physical activity, etc… because reading and math are not more important than everything else. Everyone deserves to find his/her own passion.
    
    
19. I promise to introduce you to, and teach you how to interact with, your peers. You will need both friends like you and friends that are different from you, and you’ll need to know how to interact with them.
    
    
20. I promise not to think of you as data or outcomes, but to think of you as feelings and desires and wants and needs.
    
    
21. I promise to advocate for you, always, everywhere, even when my boss disagrees, or the community disagrees, or the world disagrees. I will advocate for you.
    
    
22. I promise to teach you how to help yourself, how to advocate for yourself, and how to become the most independent person you can be.
    
    
23. I promise to love you as my student and as a person, even when my life is tough, your life is tough, and our work together is tough.
    
    
24. I promise to value function over form.
    
    
25. I promise to continually work towards your independence.
    
    
26. I promise to educate others about how extraordinary you are.
    
    
27. I promise to say something nice or positive to you daily.
    
    
28. I promise to never try to make you fit into the world’s view of “perfect.” I will value you as “perfect” just the way you are.
    
    
29. I promise to help you speak for yourself.
    
    
30. I promise to help you stand tall.
    
    
31. I promise to remember that you are whole, just the way you are.|
    
    
32. I promise to do my best not to say or do anything unkind.
    
    
33. I promise to listen to your eyes.
    
    
34. I promise to laugh with you.
    
    
35. I promise to ensure that you get to take your rightful place in the world.
    
    
36. I promise to experience and celebrate you and your joy.
    
    
37. I promise to do more than see. I promise to be a keen observer.
    
    
38. I promise to not just say ” I hear you,” but to mean it with all my heart.
    
    
39. I promise to learn from you and use what I’ve learned to help you grow.
    
    
40. I promise that as hard as it may be to watch you fail, I know that “there is dignity in risk” and realize that sometimes you will fail before you succeed.
    
    
41. I promise to facilitate your independence needs, and seek transparency and clarity for all in this process.

What promises would you make to your particular, and every other, special education student?

The original posting may be found at http://specialeducationtech.com/special-education-tech-news/an-open-special-education-contract/ which is part of a very interesting blog called Special Education {Tech}.

About the author

Chris Vacek is the Chief Innovation Officer for Heartspring and the parent of a child with both Williams Syndrome and Autism. Heartspring, located in Wichita, Kansas, is a world wide center for children with disabilities, and a leader in technology based functional independence outcomes.